I want to provide an information hub for patients diagnosed with primary plasma cell leukemia. I was diagnosed with this rare form of cancer in October, 2015. Long story short, I had an allogeneic stem cell transplant at M. D. Anderson Cancer Center in March, 2016, and lots of side effects and medical adventures. Two years later, I am still in complete remission.
I’m one of the fortunate ones. I don’t know how I got so lucky, but I want to use this good fortune to provide other patients with information.
When I was first diagnosed, I didn’t want to learn much about the disease. In pain, undergoing chemotherapy, I had enough to do just tracking what I was being told day to day. But after a few months, I started a bit of research. Because PPCL is so rare, and so aggressive, it’s understandable that there aren’t large population studies. But it was disappointing that there isn’t much written about the disease.
For now, I’m just going to start a bit of an info dump. I may redirect this to a new site later, but this is the easiest way for me to start.
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